Useful Organisations

Carers UK

Carers UK campaign to urge people to recognise the true value of carers’ contribution to society and to ensure carers get the practical, financial and emotional support they need.

Newlife Foundation for Disabled Children

Newlife Foundation helps disabled and terminally ill children in the UK. It provides equipment to help individual children, nurse led support services, pioneering medical research, awareness and campaigning.

www.newlifecharity.co.uk

Rainbow Trust Children’s Charity

Rainbow Trust Children’s Charity provides practical and emotional support to families who have a child with a life threatening or terminal illness.

www.rainbowtrust.org.uk

  • Helpline South: 01372 453309
  • North: 01434 602961

REACT

REACT (Rapid Effective Assistance for Children with Potentially Terminal illness) is a dynamic charity working to improve the quality of life for financially disadvantaged children with life-limiting illnesses living in the UK.

Anthony Nolan

Matches blood stem cell and bone marrow donors to people with blood cancer and blood disorders. Also provides support to patient and conducts research into bone marrow treatments.

Whizz-Kidz

Whizz-Kids provides disabled children with customised mobility equipment, training, advice and life skills and gives them the independence to be themselves.

Dreams Come True Charity

Dreams Come True is a national charity which makes the dreams of terminally or seriously ill children become a reality.

Family Holiday Association

The Family Holiday Association provides grants towards a one week holiday of the family’s choice. Referral needed from a health visitor or social worker.

Make-A-Wish Foundation® UK

Make-A-Wish grants magical wishes to children and young people aged 3-17 who are fighting life-threatening illnesses.

Starlight Foundation

Starlight Children’s Foundation brightens the lives of seriously and terminally ill children by granting their wishes and providing hospital entertainment to help take their minds off the pain, fear and isolation of their illness.

 

Caring Cancer Trust

Holidays to the Alps for children recovering from cancer

Chemo to the Rescue

Chemo to the Rescue – a children’s book about leukaemia

Leukaemia CARE

24 hour dedicated helpline

Leukaemia and Lymphoma Research

Children’s Hospices UK

A national charity that can provide information on local children’s hospice services.

Contact a Family

Contact a Family are a national charity providing advice, information and support for any family with a disabled child, whatever the child’s condition. Their helpline staff can answer queries on all aspects of raising a disabled child, from providing medical information about a diagnosis, giving advice about benefits and services, through to schooling and assessments and statements of special educational needs.

Christian Lewis Trust: Children’s Cancer Charity

The Trust helps families by providing emotional and practical support for the whole family, such as holidays, play therapy, befriending and bereavement support.

CLIC Sargent

CLIC Sargent cares for children and young people with cancer and their families – in hospital and in the community. It provides specialist nurses and doctors, play specialists and home from home services, family support in the community, holidays, information and grants. It also helps survivors and supports the bereaved after treatment.

Assist UK

Leads a UK wide network of locally-situated Disabled Living Centres. Each centre includes a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment and get information and advice from professional staff about what might suit them best.

Momentum

Set up by parents, aims to help children and families in the Surrey and South West London area

Over the Wall

Runs activity camps for children and young people aged 8-17 who are affected by serious and life limiting illnesses

Disabled Living Foundation

A national charity that provides free, impartial advice about all types of equipment for disabled people. It can help you find products and suppliers and also has an equipment demonstration centre. They also produce factsheets and other information resources.

Family Fund

The Family Fund helps families with severely disabled children to have choices and the opportunity to enjoy everyday life. They give grants for things such as washing machines, driving lessons, hospital visiting costs, computers and holidays.

Dreams Come True

Makes dreams come true for seriously and terminally ill children across the country

Heads High

Louise Stewart set up Heads High after her 7 year old daughter found it hard to find suitable wigs after losing her hair during chemo. She has an online shop with products for children, teens and adults.

Little Princess Trust

Accepts hair donations and makes wigs for children

Macmillan Cancer Support

Helpline, information, local support, financial assistance

Directgov

A website providing information about benefits and entitlements.

JD Travel Insurance Consultants

Accepts all kinds of medical conditions and age groups

Teenage Cancer Trust

Improves the lives of teenagers and young people with cancer

Lennox Children’s Cancer Fund

Provides support, care grants and respite breaks

Rainbow Trust

Provides emotional and practical support to families who have a child with a life threatening or terminal illness through support workers

The Child Bereavement Charity

The Child Bereavement Charity is a charity that supports families and educates professionals both when a child is dying or has died, and when a child is bereaved of someone important in their life. The charity provides a national support and information helpline for both families and professionals, award-winning publications and resources, an interactive website with online forums, and a Buckinghamshire-based family bereavement support service.

Childhood Bereavement Network

The Childhood Bereavement Network seeks to ensure that all children and young people in the UK, together with their families and other care givers, including professional carers, can easily access a choice of high-quality local and national information, guidance and support to enable them to manage the impact of death on their lives.

The Child Death Helpline

The Child Death Helpline is a helpline for anyone affected by the death of a child of any age, from pre-birth to adult, under any circumstances, however recently or long ago.

The Compassionate Friends UK

The Compassionate Friends is an organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child or children. They also offer support, advice and information to other relatives, friends and professionals who are helping the family.

Counselling Directory

Samaritans

Samaritans provides confidential non-judgmental emotional support, 24 hours a day for people who are experiencing feelings of distress or despair, including those which could lead to suicide.

TCF Sibling Support

Sibling Support is a project run by The Compassionate Friends which provides nationwide self-help support for people who have suffered the loss of a brother or sister.

Together for Short Lives

Support for families who have a child with a life limiting illness

Winston’s Wish

Winston’s Wish is the leading childhood bereavement charity and the largest provider of services to bereaved children, young people and their families.