Camden was diagnosed with DIPG, an inoperable and very aggressive brain cancer on 10th June 2019.
Camden was a cheerful, creative, and fun-loving little boy. Camden loved to make people laugh, and he could orchestrate fun like nobody’s business. He enjoyed digging in the rock pit at preschool, crashing his trucks into pretty much everything, and snuggling up to read his favourite stories over and over. Camden loved to engage in “surprise attacks” by throwing rolled-up socks at unsuspecting siblings.
Some of the earliest symptoms Camden’s family noticed before his diagnosis were issues sleeping, a nasally change in his voice, and slight balance issues. Doctors removed his tonsils, but nothing helped. He just could not sleep at night, and he was getting so tired. Then one day, Camden’s eye turned in. Following a hospital visit he diagnosed with DIPG at the age of four.
Camden’s family was forever changed. The pain of sharing what DIPG was and what it meant was going to happen to Camden was so horrific. They made it their mission to be laser-focused on what matters most–the love that they have for each member of their family. Camden never really complained about what was happening to him. There was one day when Camden’s mum mentioned her head hurt while lying in bed with him. He looked at her so seriously and said, “I know. Mine does too…all the time.” It was the closest he ever came to complaining.
Camden valiantly spent the last 12 months of his life battling DIPG before passing away on June 9, 2020, at 5½-years-old.
Funding paediatric brain cancer research is so important to Camden’s family. DIPG is a devastating disease. As a family, they value hope, and funding for research helps keep hope alive. Hope that a cure will soon be uncovered, so no other families have to live through the nightmare of watching DIPG steal their child or sibling.
I'll always be Joss' Mum
£10
A gift of just £10 could help give support to a family who are struggling with a new diagnosis
£25
A gift of £25 per month could pay for a days pioneering research into rare brain tumours
DIPG brain tumours are currently an incurable and devastating cancer.
DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing.
It’s only with your help that research into this devastating cancer is possible.
Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.
FAMILY SUPPORT
Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.
Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.
Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.
We can’t fund research and we can’t support families without you.
FINDING A CURE
At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.
Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.
Children should enjoy their childhood
Not spend their lives fighting cancer
Help us find a cure for rare brain tumours. Give your support today
