THE CHILDREN'S BRAIN TUMOUR CHARITY

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Facebook Support Groups

Open Communities and groups are vital

Facebook Groups are an amazing resource when looking for support. Generally, they offer a safe space where you can connect with other parents who have an understanding of what you’re going through. 

Because the founding trustees felt so in the dark when their son Joss was diagnosed with cancer, our charity ethos is one of openness to any resource that can help. Hence we will include any support groups by different charities that may be able to help.

Useful Numbers

Fighting to make all brain tumours curable

Tyler's Story

Age 12, Tyler started suffering from bad headaches and sickness. Initially doctors thought migraines, until his symptoms became more concerning.

Following an MRI scan Tyler was found to have a brain tumour and immediately received surgery to remove as much as possible. Unfortunately it was considered too dangerous to remove all of the tumour in one go without risk of damage. “I wasn’t too worried about having a brain tumour, the worst part was having double and blurred vision”. 

Tyler received a further 6 operations, but some of the after effects left Tyler struggling to cope. “I just wished I could hide away until things got better…. I hated the  way children stared at me for being different.

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Despite his immense problems Tyler remains positive and has been instrumental to Joss Searchlight in increasing awareness and supporting other children like him.

You can do something amazing

Challenge yourself at a sporting event. 

Donate your birthday

Remember a loved one with a donation

Give a monthly amount

Make a one-off donation

Something Special Art Event for Joss Searchlight

Work with your local community and businesses.

Ask shops to have a collection tin

Talk to schools to hold non-uniform days

Deliver Christmas envelopes 

Help us at events

Help Us Make a difference

Donating to Joss Searchlight does so much more than you think. We fund research, educate and support families

Childhood brain tumours are relatively rare.

Childhood brain tumours are thankfully relatively rare.

1500 children are diagnosed with cancer each year in the UK, of these, around 400 children are diagnosed with a brain tumour.

Most of the time symptoms that your child may show that cause you concern will not be due to a brain tumour.

However, it is important to talk to your doctor if you are concerned.

What are the Symptoms of a Childhood brain tumour ?

Symptoms of brain tumours can vary from child to child.

Symptoms can often mimic relatively minor childhood illnesses.

Common symptoms of brain tumours

Taking Your Child to a G.P if you suspect a brain tumour

If your child has one or more of the symptoms listed, or you are concerned, you should take them to see a Doctor as soon as possible.

Explain your worries about the symptoms being a sign of a possible brain tumour.

If your child is exhibiting two or more of the symptoms listed, ask the Doctor for an urgent referral, meaning  your child will be given an appointment with a specialist who can look into the cause of the symptoms.

we'd love to be friends

We promise not to inundate you with emails or messages – that’s not our style.

But when it’s really important, like a piece of research that you’re funding is getting results, it would be great to let you know.

And we will never pass on your details – guaranteed

Hi, Can you spare £3 ?

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