STORIES AND EXPERIENCES
Everyone copes with a brain tumour diagnosis differently. Although speaking about it can be painful it can have a positive effect not just for you, your children and your friends but to the wider community of people suffering a similar journey.
Although Joss Searchlight invests heavily in rare brain tumour research we haven’t forgotten our roots and why we started the charity -to give support.
Having a child diagnosed with a brain tumour is extremely painful and very worrying, we know it. The founding trustees have walked a similar path and understand the need for support both from organisations and the community.
Your stories unfortunately won’t always have a happy ending, but they do help other families to deal with a cancer journey and to realise they’re not alone .
A gift of just £10 could help give support to a family who are struggling with a new diagnosis
A gift of £25 per month could pay for a days pioneering research into rare brain tumours
A gift of £50 could fund research into devastating brain tumours in a clinical trial
You can do something amazing
Challenge yourself at a sporting event.
Donate your birthday
Remember a loved one with a donation
Give a monthly amount
Make a one-off donation
Work with your local community
Ask shops to have a collection tin
Talk to schools to hold non-uniform days
Deliver Christmas envelopes
Help us at events
Help Joss Searchlight find a cure for some of the rarest brain tumours and give support to families
Fighting to make all brain tumours curable
Being in Hospital and Treatment
To prepare a treatment plan the treatment team will look at factors such as the type of cancer, stage of the illness, your child’s age and general health. A treatment plan will outline the exact type of treatment, how often your child will receive treatment, and how long it will last. Each treatment plan is individual; even children with the same type of cancer may receive different treatments.
The types of treatment often used to treat cancer are Surgery, Radiotherapy, Proton Therapy, Chemotherapy and Immunotherapy. Most children receive a combination of therapies.
Before treatment begins, your child’s consultant will discuss the treatment plan with you, the benefits, risks, and side effects.
Being in hospital is scary for all of us but particularly children. Knowing what is going to happen and telling your child is essential
Help Us Make a difference
Donating to Joss Searchlight does so much more than you think. We fund research, educate and support cancer families across the UK
Dahlia was diagnosed in August 2020 with DIPG, or diffuse intrinsic pontine glioma. DIPG is an aggressive and difficult to treat type of brain tumor found in the brainstem that primarily affects children.
Bedford Girls School had an inspired way to raise funds by creating Canvas bags for Joss Searchlight
We totally depend on public donations. Donations will enable us to help find a cure for some of the rarest brain tumours and support families