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Your Stories

Your STories

Everyone copes with a brain tumour diagnosis differently. Although speaking about it can be painful it can have a positive effect not just for you, your children and your friends but to the wider community of people suffering a similar journey. 

Although Joss Searchlight invests heavily in rare brain tumour research we haven’t forgotten our roots and why we started the charity -to give support.

Having a child diagnosed with a brain tumour is extremely painful and very worrying, we know it.  The founding trustees have walked a similar path and understand the need for support both from organisations and the community. 

Your stories unfortunately won’t always have a happy ending, but they do help other families to deal with a cancer journey and to realise they’re not alone .


Please help Joss Searchlight give support to families

Your Help is Urgently needed to support families

We Can’t Do What We Do Without YOU

Just a Few Pounds Could Make All The Difference


A gift of just £10 could help give support to a family who are struggling with a new diagnosis


A gift of  £25 per month could pay for a days pioneering research into rare brain tumours 


A gift of £50 could fund research into devastating brain tumours in a clinical trial 

You can do something amazing

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Challenge yourself at a sporting event. 

Donate your birthday

Remember a loved one with a donation

Give a monthly amount

Make a one-off donation

Something Special Art Event for Joss Searchlight

Work with your local community 

Ask shops to have a collection tin

Talk to schools to hold non-uniform days

Deliver Christmas envelopes 

Help us at events


Help Joss Searchlight find a cure for some of the rarest brain tumours and give support to families

Fighting to make all brain tumours curable

Being in Hospital and Treatment

To prepare a treatment plan the treatment team will look at factors such as the type of cancer, stage of the illness, your child’s age and general health. A treatment plan will outline the exact type of treatment, how often your child will receive treatment, and how long it will last. Each treatment plan is individual; even children with the same type of cancer may receive different treatments. 

The types of treatment often used to treat cancer are Surgery, Radiotherapy, Proton Therapy, Chemotherapy and  Immunotherapy.  Most children receive a combination of therapies.

Before treatment begins, your child’s consultant will discuss the treatment plan with you, the benefits, risks, and side effects.

Being in hospital is scary for all of us but particularly children. Knowing what is going to happen and telling your child is essential

Help Us Make a difference

Donating to Joss Searchlight does so much more than you think. We fund research, educate and support cancer families across the UK

Elijah’s Story

At just one year old Elijah had so much personality, with big dreamy eyes and a smile that could light up a room.

Age 3 he was diagnosed with a brain tumour, a Medulloblastoma. The tumour was treated with chemotherapy and Elijah recovered well

Host an Event

Hosting an event is a great , fun way to fundraise for Joss Searchlight. Maybe afternoon tea, a cake bake sale or something truly original, like a games night or Cocktail Party

Childhood brain tumours are relatively rare.

Childhood brain tumours are thankfully relatively rare.

1500 children are diagnosed with cancer each year in the UK, of these, around 400 children are diagnosed with a brain tumour.

Most of the time symptoms that your child may show that cause you concern will not be due to a brain tumour.

However, it is important to talk to your doctor if you are concerned.

What are the Symptoms of a Childhood brain tumour ?

Symptoms of brain tumours can vary from child to child.

Symptoms can often mimic relatively minor childhood illnesses.

Common symptoms of brain tumours

Taking Your Child to a G.P if you suspect a brain tumour

If your child has one or more of the symptoms listed, or you are concerned, you should take them to see a Doctor as soon as possible.

Explain your worries about the symptoms being a sign of a possible brain tumour.

If your child is exhibiting two or more of the symptoms listed, ask the Doctor for an urgent referral, meaning  your child will be given an appointment with a specialist who can look into the cause of the symptoms.

we'd love to be friends

We promise not to inundate you with emails or messages – that’s not our style.

But when it’s really important, like a piece of research that you’re funding is getting results, it would be great to let you know.

And we will never pass on your details – guaranteed

Hi, Can you spare £3 ?

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