THE CHILDREN'S BRAIN TUMOUR CHARITY

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Jaden’s Story

Jaden was diagnosed aged 14 with an incurable brain tumour –  DIPG in 2018. Jaden was a free spirit, sassy and determined. She loved playing the saxophone in her school band. She also loved watching NETFLIX and watched TV & movies like no other!

Her symptoms started with headaches, some blurred vision, and then her balance was affected. Doctors all seemed to think it was sinus, migraines, or something to do with her inner ear causing balance issues.

Jaden battled her cancer bravely until July, 2019 when she passed away at the age of just 15.

In August 2018 Jaden’s mum received a phone call from her school. Jaden was very disoriented, unable to balance and had slurred speech.

During the 2 hour drive to the hospital Jaden lost feeling in her right side, she could no longer talk or swallow and she was having problems breathing. Her mum pulled over in the car and called an ambulance to take her to hospital. 

Jaden had an urgent MRI scan and surgeons inserted a drain in her head to help reduce swelling/pressure. Her parents were given the devastating news that Jaden had a Diffuse Intrinsic Pontine Gliomas.  A DIPG is a highly aggressive and terminal brain tumour in the brain stem. Jaden’s tumour also bled creating further complications.

Losing a sibling stays with you forever

£10

A gift of just £10 could help give support to a family who are struggling with a new diagnosis

£25

A gift of  £25 per month could pay for a days pioneering research into rare brain tumours 

£50

A gift of £50 could fund research into devastating brain tumours in a clinical trial 

DIPG brain tumours are currently an incurable and devastating cancer.

DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing. 

It’s only with your help that research into this devastating cancer is possible.

Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.

FAMILY SUPPORT

Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.

Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.

Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.

We can’t fund research and we can’t support families without you. 

FINDING A CURE

At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.

Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.

Children should enjoy their childhood
Not spend their lives fighting cancer

Help us find a cure for rare brain tumours. Give your support today

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