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Jizae’s Story

Please send positive vibes to 9 year old Jizae who was diagnosed with a DIPG in August 2023, she was given no chance of survival. DIPG is an aggressive brain cancer with an average 9 month survival rate, but not a good 9 months.

Nini, Jizae’s mum said “My beautiful baby girl, my Angel, my goofy child, the crazy wild most energetic kid known. I brought her in for a headache and she has now been diagnosed with the most fatal cancer”

Last week however there was incredible news when Jizae’s brain scan revealed shrinkage. Jizae’s mum, Nini, said “Jizae’s tumour started off at 6.2×5.2×4.6 at diagnosis, she is now at 3.4 x3.2.×2.4. We are are very grateful for al the support and love please keep us in prayers as this journey continue. But today we celebrate”

Late last year doctors advised Nini that the tumour was very aggressive saying Jizae may pass away any day now. Surgery isn’t an option due to where the tumour is located. Palliative care of chemo and radiation may extend her life by up to a year. 

Jizae finished the first round of radiation in October 2023. Doctors told Nini  This tumour likes to grow back in 8 months or so though we are hoping it doesn’t, please live in the moment and enjoy the time you have left together” 

 Nini said “I felt broken all over again, I can eat, I can’t sleep thinking I’m going to wake up and she’ll be gone is the hardest feeling in the World. But this fight isn’t over. As of now Jizae is doing well in her fight and she is able to return to school, she’s beyond happy”

The family are committed to giving Jizae as much fun and happiness as they can.

I'll always be Joss' Mum


A gift of just £10 could help give support to a family who are struggling with a new diagnosis


A gift of  £25 per month could pay for a days pioneering research into rare brain tumours 


A gift of £50 could fund research into devastating brain tumours in a clinical trial 

DIPG brain tumours are currently an incurable and devastating cancer.

DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing. 

It’s only with your help that research into this devastating cancer is possible.

Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.


Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.

Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.

Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.

We can’t fund research and we can’t support families without you. 


At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.

Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.

Children should enjoy their childhood
Not spend their lives fighting cancer

Help us find a cure for rare brain tumours. Give your support today

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