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Kiera’s Story

Kiera was so sweet, sassy, and smart. She loved playing outside, gardening, swimming and animals. She loved Disney movies, especially, The Nightmare Before Christmas and Frozen. 

She couldn’t walk after her diagnosis, the steroids made her cranky, but she was the bravest and strongest little girl.

In April 2020, Kiera’s parents noticed that she would tiptoe with her left leg, which eventually got worse until she couldn’t walk anymore. They took her to an Orthopedic doctor who diagnosed her with Spastic Hemiplegic Cerebral Palsy affecting the left side. Kiera was fitted for a brace. In October, she began complaining of headaches in the back of her head that started increasing in frequency to every day almost all day, sometimes waking up from the pain. She also started choking on food more often, as well. Kiera’s parents were extremely worried and took her to see a Neurologist who scheduled her for an MRI. On December 21, 2020, they received the devastating diagnosis of a Pontine Glioma.

Kiera and her family were lucky enough to get a trip to Disney after her radiation treatments. Kiera was so happy being in Disney. She and her family went to Magic Kingdom on their last day and got to see the Princess Parade. She was so happy she didn’t have to see a doctor the whole trip.

Kiera valiantly battled for nearly five months before passing away in May 2021.

I'll always be Joss' Mum


A gift of just £10 could help give support to a family who are struggling with a new diagnosis


A gift of  £25 per month could pay for a days pioneering research into rare brain tumours 


A gift of £50 could fund research into devastating brain tumours in a clinical trial 

DIPG brain tumours are currently an incurable and devastating cancer.

DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing. 

It’s only with your help that research into this devastating cancer is possible.

Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.


Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.

Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.

Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.

We can’t fund research and we can’t support families without you. 


At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.

Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.

Children should enjoy their childhood
Not spend their lives fighting cancer

Help us find a cure for rare brain tumours. Give your support today

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We promise not to inundate you with emails or messages – that’s not our style.

But when it’s really important, like a piece of research that you’re funding is getting results, it would be great to let you know.

And we will never pass on your details – guaranteed

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