CHILDREN WITH A DIPG DON'T USUALLY SURVIVE FOR LONGER THAN 18 MONTHS
Why is DIPG one of the worst cancers?
Because it is currently incurable and pretty much untreatable in any way. The tumour is diffuse, meaning its not something that can be removed and is most often wrapped around the brainstem, meaning removal is impossible and chemotherapy not a viable option.
Dylan died aged 6. 20/02/14 – 09/04/20
Be Part of the Journey
It’s only with your help that research into this devastating cancer is possible.
Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.
Lilly 10/02/13 - 04/03/21
At just 7 years old this fun loving and happy girl was diagnosed with one of the world’s worst cancers – a DIPG.
Lilly died six and half months after a DIPG diagnosis, aged 8.
DIPG (DMG) Research is Vital
Sadly more children like Lilly will die from this awful cancer and more families will have their lives ripped apart.
30 children a month are diagnosed with a brain tumour and approximately 7% of these children (25 – 30) per year will be DIPG and completely incurable.
Since we started Joss Searchlight that could represent more than 300 young children who have lost their lives to this devastating cancer.
A sad statistic is that DIPG, despite killing so many children, receives just 0.0005% of cancer research funding.
FINDING A CURE
At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.
Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.
Children should enjoy their childhood
Not spend their whole time fighting cancer
Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.
Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.
We can’t fund research and we can’t support families without you.
Help us find a cure for rare brain tumours and give your support today