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Taliyah’s Story

Taliyah was diagnosed with DIPG in September 2018 and she fought with courage and faith for eight months. 

“She is the light in my life, the one that I can look to and it all makes sense,” her mother said. “Every struggle, every adversity was worth it because I had unconditional love. She is my lifeline, my other heartbeat. My heart will never beat the same again.”

“Once her breathing was affected . . .,” her mum said. “It was the disease, DIPG (tumour) had grown and spread all over.”

Taliyah for Joss Searchlight

Taliyah loved school and she was a smart student, she enjoyed reading, science, gym. She loved sports and outside of school she played lacrosse and took part in dance and gymnastic. Taliyah also enjoyed ballet, acting and Girl Scouts where she had earned over sixty merit badges. She also loved riding her bicycle, going to the beach and going camping. Taliyah liked travelling and had visited many countries with her mum.Taliyah was a kind and friendly little girl with an infectious smile. She is described as talkative, sassy and energetic.

“Through this whole journey,” Taliyah’s mum said, “God carried us.”

Taliyah for Joss Searchlight

I'll always be Joss' Mum


A gift of just £10 could help give support to a family who are struggling with a new diagnosis


A gift of  £25 per month could pay for a days pioneering research into rare brain tumours 


A gift of £50 could fund research into devastating brain tumours in a clinical trial 

DIPG brain tumours are currently an incurable and devastating cancer.

DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing. 

It’s only with your help that research into this devastating cancer is possible.

Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.


Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.

Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.

Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.

We can’t fund research and we can’t support families without you. 


At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.

Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.

Children should enjoy their childhood
Not spend their lives fighting cancer

Help us find a cure for rare brain tumours. Give your support today

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But when it’s really important, like a piece of research that you’re funding is getting results, it would be great to let you know.

And we will never pass on your details – guaranteed

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