Zoe’s Story

In May 2016, Zoe was diagnosed with an inoperable brain tumour called DIPG. After completing radiotherapy here in the U.K. Zoe, together with her parents Émilie and Sylvain travelled to Mexico for further treatment. Zoe’s family are French and have lived in the UK for the past 12 years and Zoe was the first French girl to benefit from chemo-intra-arterial and immunotherapy.

These cancer treatments are not available through the NHS so the family had to raise considerable funds for the treatment, they relied on the support of literally thousands of people. Zoe’s story touched the hearts of the French professional footballer André-Pierre Gignac and his wife organised a charity auction in Mexico to help raise the funds needed to treat Zoe.

Zoe started to show signs of improvement, sadly however due to complications she was unable to continue the treatment and her condition deteriorated. She died in 2019 at the palliative care unit at Naomi House hospice in Hampshire.She celebrated her eighth birthday just the month before. Zoey was tenacious and determined, qualities that  stood her in good stead for this fight. She was also bright, affectionate and funny, Zoe particularly enjoyed a little slapstick. During her long  battle there were many tough times but Zoe and her family  continued to find the joy and wonder in every day.

Zoe’s mum Émilie said “Zoe’s spirit in the face of such adversity was startling and amazing, she taught us to seize and live every minute and not to sweat the small stuff.

She was cherished and loved, it was that blanket of love and certainty that helped give Zoe the spirit, the resilience and the courage to  carry on living, and really living in a quite spectacular way, for the three years of her illness. Zoe was bubbly, outgoing, happy, funny, silly at times and just simply like no other. Everyone who loves her misses her laugh, her giggle and her sparkling eyes. Naturally openhearted, energetic, verbal, and communicative with everyone around her, whether it was a relative, family friends, or neighbours, old and young, she would, without exception, develop meaningful relationships and make them happy”

I'll always be Joss' Mum


A gift of just £10 could help give support to a family who are struggling with a new diagnosis


A gift of  £25 per month could pay for a days pioneering research into rare brain tumours 


A gift of £50 could fund research into devastating brain tumours in a clinical trial 

DIPG brain tumours are currently an incurable and devastating cancer.

DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing. 

It’s only with your help that research into this devastating cancer is possible.

Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.


Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.

Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.

Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.

We can’t fund research and we can’t support families without you. 


At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.

Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.

Children should enjoy their childhood
Not spend their lives fighting cancer

Help us find a cure for rare brain tumours. Give your support today

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