JJ will turn 21 on 25th May 2024 and is celebrating twelve years of surviving his DIPG, fatal brain cancer diagnosis.
JJ’s message to all the kids with DIPG is “I want you to know that you’re not on the journey alone. I was diagnosed age 8 and had a shunt put in the right side of my head. I had to do 6 weeks of radiation and with that I did chemo pills for 2 years. I pray for all the kids with DIPG. God Bless”
His sister Jashai said. It’s 12 years we received the devastating news that my little brother had a brain tumour. The emotions and the fear of the unknown was almost unbearable. He was only 8 at diagnosis and didn’t understand the seriousness of it all. Everything happened so fast. It went from “a virus that’s taking a while to get over” to him loosing his balance and having double vision to have surgery to fit a shunt in his head to relieve the pressure to having radiation and chemo. My brother went through it! I was already protective of him and it went to another level after he was diagnosed. I’ve got his back! My little brother is still here getting on my nerves everyday and I wouldn’t have it any other way!”
Denise, JJ’s mum said : “The MRI results came back, the tumour is still stable and no new growth!!! When the doctor said they be discussing JJ in meetings because even though he has DIPG he’s not acting like it”
I'll always be Joss' Mum
£10
A gift of just £10 could help give support to a family who are struggling with a new diagnosis
£25
A gift of £25 per month could pay for a days pioneering research into rare brain tumours
DIPG brain tumours are currently an incurable and devastating cancer.
DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing.
It’s only with your help that research into this devastating cancer is possible.
Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.
FAMILY SUPPORT
Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.
Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.
Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.
We can’t fund research and we can’t support families without you.
FINDING A CURE
At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.
Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.
Children should enjoy their childhood
Not spend their lives fighting cancer
Help us find a cure for rare brain tumours. Give your support today
