Ronan was a highly athletic 12-year-old boy who was known for his humour, giggle, friendships, kindness, great hair, and love of shoes! He was such a great big brother to Aidan, who is three years younger.
Ronan, through pure grit and resilience, made it to his 13th birthday in February 2019. He battled for 278 days.
The family received the devastating diagnosis of a terminal, inoperable brain tumour in August 2018. Ronan’s live expectancy was measured in months. Ronan was treated with radiation therapy in the hope of shrinking the tumour and buying some extra time.
Ronan wrote a long bucket list including go snowboarding, skydiving, quad biking, campouts, a rap concert, go to Disney World & Universal and get a puppy.
His mum, Sarah Jane said “There was a lifetime of experiences and memories to create in a few short months. His last week got tough, the last couple of days became unbearable. It became so hard for him to function in any way. This disease is cruel and shows no mercy. We prayed that he would get his wish, to go to sleep and never wake – he finally got his wish. His little brother Aidan will have to live his life without the support and love of his big brother. They will never reach those milestones together that we assumed would be a part of their lives”
Tom Chambers supports
Joss Searchlight
£10
A gift of just £10 could help give support to a family who are struggling with a new diagnosis
£25
A gift of £25 per month could pay for a days pioneering research into rare brain tumours
DIPG brain tumours are currently an incurable and devastating cancer.
DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing.
It’s only with your help that research into this devastating cancer is possible.
Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.
FAMILY SUPPORT
Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.
Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.
Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.
We can’t fund research and we can’t support families without you.
FINDING A CURE
At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.
Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.
Children should enjoy their childhood
Not spend their lives fighting cancer
Help us find a cure for rare brain tumours. Give your support today
