Sunnie is everything her name means. She is bright, smart, caring and full of life. She is the light that brightens every room she enters. She has an old soul and is mature beyond her years. Sunnie was diagnosed with an aggressive DIPG brain cancer in October 2022 just 4 days after turning 10 years old.
Since then she has had brain surgery (shunt placement), undergone 30 rounds of radiation to the brain stem, completed 5 rounds of chemo and 4 rounds of Avastin.
Her mum says “Sunnie continues to live her life the best she can. She is smart, charismatic, sassy, a DIVA with a huge, big heart, and she loves to give. She loves all animals, especially dogs, and has a passion for dance, music, singing, art, and swimming. She’s already said she wants to be a Disney Channel star, wants to travel everywhere, and her favourite place is the beach. It’s been a painful, wild, emotional, stressful, and oddly beautiful 10 months. Throughout the majority of that she continued to go to school and complete her assignments. I said oddly beautiful because even though we were dealt the worst possible diagnosis with a very grim outcome – we’ve managed to find beauty in the pain. We’ve grown closer to God, made so many wonderful memories and have had the absolute best community rally around us. We’ve focused on each other and tried very hard not to take the small moments for granted. Right now- right now she is healing. The tumour is shrinking. She is feeling like herself again. She is fighting! And that is all I have prayed for!”
Laura and Danielle
I'll always be Joss' Mum
A gift of just £10 could help give support to a family who are struggling with a new diagnosis
A gift of £25 per month could pay for a days pioneering research into rare brain tumours
A gift of £50 could fund research into devastating brain tumours in a clinical trial
DIPG brain tumours are currently an incurable and devastating cancer.
DIPG robs a child of their hearing, sight, movement, the ability to swallow and eventually their breathing.
It’s only with your help that research into this devastating cancer is possible.
Joss Searchlight are funding vital research into the most life-threatening brain tumours. Please be part of our journey.
Along with providing financial grants to help families struggling with the expenses of having a child with cancer we also provide life changing support.
Support Workers who advise, visit and support families with compassion are an essential part of Joss Searchlight.
Family support is in our DNA, as the founding trustees know what an important part compassionate support played in helping them during their son’s illness and after his sad death.
We can’t fund research and we can’t support families without you.
FINDING A CURE
At Joss Searchlight we totally depend on donations. Donations enable us to fund vital brain tumour research, to find a cure for some of the rarest brain tumours, to campaign for better treatments and support families on their cancer journey when they need it most.
Research organisations need funding stability, they need to know that they have enough money coming in every month to allow them to do their incredibly important work. We need to pledge a certain amount of funding every year to make sure they’re able to do everything they can to find cures and treatment programmes for some of the hardest-to-treat brain tumours.
Children should enjoy their childhood
Not spend their lives fighting cancer
Help us find a cure for rare brain tumours. Give your support today